Minisinoo
I woke somewhere after midnight
in
a soaking wet bed. It was so bad, I had to change my sheets and
take a
shower. By morning, muscle aches and diarrhea had appeared,
too. Joy. I
lay on my back and stared at the ceiling. The light in the room
was
unusually bright because it had snowed the night before, not much, but
enough to coat
the lawn and reflect the morning sun, and the big, drafty mansion was
colder
than a witch's tit. Even with a fever in my bones, I had heavy
covers
piled
on. I felt too ill to get up, and I was angry. Furious, in
fact.
Couldn't fate see fit to give me
a break?
It seemed that for every good thing that happened in my life, something
bad
came along to trump it. Sure, I'd expected the disease to hit
eventually, but I'd hoped for a little longer before it did. It
was
only the Monday after Thanksgiving.
Rolling over, I fell back to sleep, woke again when a light touch tapped me on a mental shoulder. The professor, wanting to know where I was. I might not have been a morning person, but I did usually show my face by noon. Yet according to my bedside clock, it was after two. Sorry, I sent back to him. I'm not feeling well. For some reason, I didn't want him to know precisely how -- protecting him, perhaps, though he'd find out the truth soon enough. I think I just want to sleep.
I should've known that wasn't going to work. He was knocking on my door within five minutes. Sighing, I called, "Come in." He never enters my room uninvited, even though it's his house.
Pushing the door open, he motored
his way in and up to my bed, reaching out to lay the back of his hand
on my forehead. "Definitely fevered. Have you taken cold
medicine?"
"No, sir."
"Not even aspirin?"
"No, sir." With the drug cocktails Hank fed me, I was afraid to touch anything else. I'd taken some Excedrin one afternoon half a year ago for a headache, and had wound up puking my guts out in the toilet from the drug interaction. Just the cocktails themselves were bad enough.
"What are your other symptoms,
besides this fever?"
"Muscle aches, upset stomach,
diarrhea."
"I do believe you have the
beginnings of a winter flu, Mr. Summers. It's been going
around." He
didn't sound very worried, almost amused, in fact. "Stay in bed
and
rest, and I'll
have the cook send up some chicken soup and apple juice. Henry
will be
in to see you when he returns from the hospital. It will be late,
though,
I fear."
"Okay. Thanks." I rolled onto my side away from him. I hadn't told him about the night sweat and wondered if I should, then decided just to save it for Hank. It wasn't like the professor could do anything, besides worry.
The cook woke me a little later
with food. I could barely eat, though I did drink all the juice
and she
sent up more in a cooler, so I didn't have to go very far to fetch
it. I slept most of the day, rising only to hit the
bathroom. I forgot all
about the drugs I was supposed to be taking. Hank arrived home
after
eleven in the evening and came straight up. I'd been sleeping
again,
but when he woke
me, I'd already drenched the bed, just like the night before. He
changed
the sheets himself and made me sit in a chair, drinking more
juice. "Staying
hydrated is very important, Scott." He didn't say anything else
and I
watched
him. He looked tired after a day at the hospital, but when he was
done,
he
asked, "Do you think you can get down to the medlab with my help?"
Wobbly on my feet and fuzzyheaded, I hadn't moved further than the room's private bath all day, but I nodded. He got a robe on me and took me down to the lab, kept me from staggering into the walls. I couldn't walk straight and my head was buzzing. I ached all over and had to move slowly to avoid becoming so dizzy, I threw up. Hank was extraordinarily patient. I suppose he could have picked me up and carried me like a baby, but he let me get there on my own two feet.
In the lab, though, he simply lifted me up onto the exam table himself. "Lie down," he said. I did and he ran the usual tests, checking my temperature, blood pressure, listening to my breathing, checking my ears and throat (though definitely not my pupils). He didn't ask me for anything beyond my symptoms, which I gave him in more complete detail than I'd given Xavier. His face was solemn as he gloved to take a small blood sample. Then he gave me some new medication, took me off my usual medication, and slapped me (unexpectedly) with a saline IV on a slow drip. "I'd like you to stay here tonight. Between fever and diarrhea, you've lost a lot of fluid. You're dizzy and light-headed right now from simple dehydration." Then he took me to one of the med beds off the main bay and tucked me in. I didn't wake until sometime early in the morning. The sheets were damp again, but not as badly as before and I was able to ignore it, empty my bladder and go back to sleep.
Hank came in before he left for the hospital and took out the IV. "You look much better today, not so dark under the eyes or so flushed." He gave me some more medication and helped me back up to my room, putting me to bed. Later that morning, the professor visited and we talked for a while until I fell asleep again. I'd probably slept forty of the last forty-eight hours. By evening, though, I felt well enough to get up and come downstairs for supper, or rather, more soup for me, supper for the professor. The cook clucked about like a mother hen and stocked up my cooler with juice. Mindful of what Hank had said the night before, I made sure to drink plenty, even if it meant running to the restroom. Everything seemed to go right through me.
Hank was back earlier that
night. He must have gone straight to the sub-basement as we
didn't see him
until after supper. He entered the dining hall where Xavier and I
were
talking over juice and tea. I had one of the mansion cats
sprawled in
my lap, a
big fat black male with his legs hanging off either side.
"Scott," Hank
said, "could I see you in the lab?"
Glancing at Xavier, I rose
(dumping the cat, who protested loudly) and followed him out. I
didn't
need his assistance this time to get downstairs. "You're feeling
better, I see."
"Yeah."
"Excellent." But he said
nothing
more than that. In the lab, he gloved and we went through the
full
blood test procedure, tourniquet and all. He took four vials, two
from
each arm. "Geez Louise, Hank." I eyed him. "Is it
that bad already?"
He just shook his head and gave
me
more medication. Whatever it was must have had a sleeping drought
in
it,
because I was back in bed within half an hour. I slept the night
through,
and for once, didn't soak my sheets. In the morning, I was
sneezing and
had
a runny nose, but otherwise, felt better. I was getting over the
bug
quickly,
whatever it had been -- far more quickly than I'd expected.
Didn't AIDS
interfere with the immune system? But that evening, Hank called
me down
to the lab once again and took yet more blood as well as a cheek
swab. I was starting to get nervous because he still wasn't
telling me a damn
thing. "What
the hell is up?"
"I can't say anything until I've completed all tests, Scott, and some of them require intensive lab work, running gels, separating proteins to blot strips, and then incubation periods. That means I need time." He glanced at me. "I should know something by next Thursday." Thursday seemed a long way away -- a full week. Just a week ago, I'd been stuffing myself with turkey.
Jean showed up at the mansion on Friday evening for the weekend, but disappeared into the lab with Hank as soon as he got home. I wasn't sure that I liked the notion Jean now knew I was HIV positive, but as she knew everything else, it seemed a trivial objection. I was called down yet again for the routine blood sample, though this time, they took only a single vial. I was still sniffling and tired, but definitely on the mend. I saw little of either Hank or Jean all weekend, so I had no chance to talk to Jean, but by Sunday, I felt considerably better, and by Monday, I showed up in Xavier's office for my usual lessons. Hank continued to take blood samples from me on a regular basis.
He was on all-night call Wednesday, but returned home by ten on Thursday morning, retreating to the lab to work instead of to his bedroom to sleep. That made me feel guilty as well as nervous about the results of what he was doing down there. I tried going to class, but found concentrating impossible and Xavier dismissed me, advising me to take a ride, yet by the time I had my gelding tacked, it'd begun to snow, as if to confirm that yes, December had arrived. The previous Monday's snowfall had melted off by noon the same day (though I hadn't been awake to notice), but today it came down heavy and I thought it might stick. Sighing, I took the horse back to the interior arena and we worked there, though he showed more enthusiasm for it than I. The rest of the afternoon, I spent cleaning or polishing because it kept me warm and made me too tired to think, while not requiring any real focus. Dark was approaching by the time I felt Xavier's touch on my mind: Hank and Jean are requesting our presence downstairs.
Jean's here?
She arrived after lunch.
Well, that was interesting; she
almost never came out to the mansion during the week. Being in
the
stables,
I'd missed her arrival just like I'd missed lunch, but I hadn't been
hungry, and now, the fact she was here and Hank was calling down both
Xavier and me suggested his news wouldn't be good -- though I'd been
expecting as
much. Still, as the professor and I took the elevator below, my
belly
rumbled and I belched. Loudly. My stomach could always be
counted on to
give me away when I was nervous. Xavier glanced over at me.
"He didn't
sound
upset, Scott."
"Yeah, well, if it wasn't bad,
why
does he want us both? He could tell me it was just the flu
without an
audience."
Xavier couldn't answer that, but he'd been right about Hank's mood, he'd just understated it by a magnitude of ten. Hank was all but bouncing off the walls (literally, in his case), and Jean wore one of her vibrant smiles. She turned at the sound of the pneumatic doors swishing open.
"Jesus," I said to them
both. "You
guys look like you won the damn lottery."
"In a manner of speaking, I do believe that you have!" Hank replied, leaping a lab table dangerously close to the equipment and hurrying over to take my elbow and pull me towards a metal tray. "Look, look!" On it lay a variety of what appeared to be test strips and slides. All of them were rather . . . blank.
"Yeah, so?"
"They're negative, Scott," Jean told me, having leaned up against the table on the other side. She pointed them out. "The Chiron QC-PCR and the Coulter ELISA." She held up one of the slides. "Nothing. Zilch. Duplicated zilch, in fact." She picked up the mate of the slide she was holding.
I blinked behind my
glasses. They
couldn't be saying what I thought they were saying, could they? I
turned to Xavier, who appeared as astonished as I was.
"Okay. But what
the fuck does this all mean?"
"These are standard HIV tests,"
Hank explained. "The same ones I gave you September of last year
--
well,
not the PCR test -- and again in April right after your mutation
manifested. But these are negative. You're negative.
HIV negative. At no point before has your blood ever been
completely
free of
the virus. You have a drug-resistant strain. Moreover, I
took you off
your usual antiretroviral meds when you came down with the flu and
haven't
put you back on them. It's been almost two weeks -- yet there's
still
no
detectable virus in your blood."
"That's impossible."
"We know," Jean said, but she was
smiling. "That's why we did the tests several times. Every
one reads
negative. But before, every test Hank ran came out showing some
trace
of the virus."
"I had to be sure," Hank
explained. "I didn't want to say anything until I was fairly
sure. It's
still not a hundred percent, but -- "
"-- but this is impossible," I said again, mostly because I was afraid to believe them.
Xavier had motored up to the lab
table as well and accepted the tray of results that Hank handed
him. "You are certain of these, Henry? Could the test units
have been
faulty?"
"I already thought of that. I purchased additional units for duplication from Coulter, and Jean and I made up fresh batches of chemicals. Like I said . . . it's not a hundred percent, but his viral loads have always been somewhat high, CD4 counts low, even on the drugs -- and now he's showing nothing. No detectable virus in the blood, so something has to be controlling it.
"Back in September, I did the
standard ELISA test, then verified it with a Western Blot. We
started
the antiretroviral treatments. I checked again in December and in
May,
to track the advance of the infection. The drug cocktails had
taken
down the viral presence, but not to zero and it didn't change much
between December and May. In
fact, the May counts were slightly higher . . . and I think I
now
know why. I should have done a third check-up on him last month,
but
with
all the court proceedings, I put it on hold. So when he turned up
ill
on
Monday with night sweats, I immediately ran a count on CD4 T
lymphocytes,
expecting to find them lowered."
Hank pushed himself up to sit on the lab table to face all of us. "Instead his CD8 and CD4 counts were higher than usual, not lower. That's exactly what I'd expect to find in someone suffering a viral infection . . . but not necessarily what you find with HIV disease. In short, his immune system was working normally -- that is, overtime to trounce the flu virus. Plus, the HIV antibodies were significantly lower, suggesting there was no HIV virus present in the blood . . . and probably hadn't been for a while.
"The next day, I took more blood samples. While the CD8 and CD4 counts were still high, the flu virus was weaker than it should have been -- particularly that virus, as we have a nasty strain out and about this year. He was defeating it faster than normal, not slower. So I took the rest of the blood and ran a standard battery of tests, including the newest version of ELISA. When I got the results, I was floored. The ELISA test came up showing him negative for HIV." Reaching over, he plucked up a Polaroid shot of a test result with a date and my name on the back, and handed it to me. "You might want to save that for sentimental value.
"You have to understand, ELISA is a problematic test because it's inclined to false positives . . . not false negatives. It's usually used as a first line test for that reason. It's got a 99.7% sensitivity rating -- that is, it almost always catches the disease. If it says you're negative, then you're almost certainly negative. It's when it shows a positive that we do a back-up test, usually the Western Blot. That's what I did for Scott a year ago. The ELISA showed positive, so I ran the other test to confirm it.
"On Thursday, I took more blood
and a cheek swab and began a battery of HIV tests. Those are what
Jean
and I were finishing this afternoon." He gestured to the
tray. "All
negative. Even more interesting, the influenza virus is
completely
dead. In most patients, this virus takes one to two weeks to be
eliminated from the system. Scott's body killed it in four or
five days."
I'd listened to Hank's rain of
words with increasing confusion. I both did and didn't understand
what
he
was saying and ran a hand through my hair, more upset than
jubilant. Jean
had sensed that and come around the lab table to slip an arm about my
waist. "I don't get it," I said. "I don't get
it. Are you
saying
I'm a . . . walking cure for AIDS or something?"
"Or something," Hank
replied. "We
don't know for sure how this happened, though I have a theory."
Xavier held up a hand to halt
Hank
before he could launch in. "Scott -- do you need to sit down?"
"I -- yeah. Yeah, I do." Jean reached with her mind, never letting go of me, and brought a nearby lab stool to set it down behind me, easing me onto it. "This is . . . " but I trailed off. I had no idea how to express what I was feeling, nor did I even fully understand it.
I'd been prepared to die. Not tomorrow, perhaps, but long before my allotted four score and ten years. Now, Hank was handing me a reprieve. I should have been jubilant, ecstatic, delighted. Instead, I was just . . . numb, unsure how to respond, afraid to be hopeful but guilty for feeling broadsided. How many people dreamt of receiving news like this? Yet I was just confused by my good fortune.
"How?" I said finally, and Xavier nodded then to Hank.
"I think it's your mutation."
"You mean I have another one?"
"No, I mean it's a side effect of
the one you have. We'll have to run more tests to be sure, but as
near
as I can guess, your body's natural process of converting solar
radiation into force blasts also contributes to the irradiation
of bacteria and
viruses. Now, normally, UV light kills bacteria but excites
latent viruses -- such as HIV -- by responding to the cellular proteins
a cell makes when damaged; the virus 'turns on,' making more of
itself. In fact, when Scott first became ill, I feared that's
what had
occurred. That his mutation had sped things up."
He glanced over at me. "I didn't want to say anything to you about that possibility earlier, as I had no real idea what your mutation would do and saw little reason to alarm you with vague possibilities. As it turns out, that was wise. Apparently, the amount of UV light you absorb is so great, and the conversion process so powerful, your body kills both bacteria and viruses. Not instantly, at least not with viruses -- they do go into a brief frenzy of replicating themselves, which can make your initial reaction stronger and I suspect that's the reason you fell so ill with the flu. Combined with the antiretroviral drugs I've been giving you plus HIV damage, your body had a hard time fighting it off.
"I suspect you've been HIV
negative since early summer, but as I took blood samples only a few
weeks after you manifested, your body hadn't had time to kill all the
virus in the
plasma and blood cells yet. That's why the counts were higher in
May. The virus was desperately trying to reproduce itself fast
enough to
survive."
"Could I cure others?"
Hank's eyes turned sad. "I
think
not, although we will run additional tests just to make sure it's not
something your body produces that killed it. But I fear
it
works only for you, nor will your mutation save you from other sorts of
illness, only
bacterial and viral infections. Moreover, HIV infects some cells
that
have
a very long half-life, the memory T cells. You aren't completely
free
of
the virus and may never be in your lifetime . . . but you'll never
develop
AIDS. Any new virus produced from latently infected memory T
cells
would
be killed before it could infect new cells."
"What if this is all a mistake?"
Jean squeezed my waist.
"That's
why we waited till today even to tell you this much. So your
hopes
wouldn't be raised falsely. We'll wait a few more months and run
tests
again, but neither of us expects the results to change. You're
not
going to die, Scott, at least not from HIV."
I got up and walked away from them at that point, walked right out of the lab, took the elevator above, grabbed a coat, scarf and boots, and went for a walk outside in the snow and twilight. I'm sure they hadn't expected that response, but what do you say when someone hands your life back to you? It had taken me a year to get used to the idea that I was going to die. I couldn't get used to the idea that I was going to live in the blink of an eye. It changed so much. If I were going to live, that meant I had to figure out what I was going to do with myself.
I hadn't gotten very far, ambling
about the estate yard with no clear direction, when I spotted Jean
tromping through the snow after me. "Scott," she called, her
breath
white in the frigid air. "It's almost dark and you're still
getting
over the flu!"
I stopped in the shade of an
evergreen near the mansion wall. Flurries swirled in the wind and
the
cold bit
at my nose and ears. "I wore a scarf."
She rolled her eyes and slipped
her arm into mine, dragging me back towards the mansion. I balked
and
she looked back at me. "What is it?"
"I just -- I want to be
alone."
Her expression was more impatient
than puzzled. "Why?"
"I don't know. I just
do. I need
. . . I need to think, okay?"
The impatience softened.
"All
right. But please don't stand around outside."
"I'll go down to the
boathouse. Will that do?"
She nodded, then leaned in
unexpectedly to kiss me on the cheek, her breath warm again my
skin. "I'm so happy for you."
The kiss caught me by surprise
even though Jean's inclined to such gestures, and I stiffened.
Sensing
it, she pulled back. "Sorry. Sorry, I -- I never asked
permission to
touch you, did I? I just do it all the time. That's rude of
me, isn't
it?"
Surprised, I glanced at
her. "It's
okay."
"No, it's not okay. It's
intrusive." She looked down at the toes of her boots half buried
in the
snow. "I'll quit."
"No, please." I put a hand
up to
my forehead. I wasn't sure how to say what I wanted to, but I
didn't
want her to stop. "I like it." And boy, that came out
wrong. It sounded
almost like a come-on, which I certainly hadn't meant. "It's
okay. Really. Just sometimes . . . sometimes there's . . .
I don't know . . . ." I trailed
off, frustrated. I couldn't look at her. "But it doesn't
bother me, not
like you mean."
How does one explain, Please
don't stop touching me because you do it with such kindness and I'm not
used to that, but I like it more than I can say? It was too
tender. I could barely acknowledge that in my own head, much less
articulate it
aloud. All I could verbalize was, "Please, don't stop."
And now neither of us seemed to know what to say or where to look. She gestured towards the house. "I'll go on back and leave you alone." But her tone sounded on the edge of breaking and I looked up. Her cheeks were bright (though whether with embarrassment or the cold, I couldn't tell), and her shoulders had slumped. Ever since that day in the mall, things between us hadn't been as easy, spoiled by too much knowledge on my part and a certain caution on hers. We'd been trying to ignore it, but it felt as if a chasm yawned between us and I didn't like that. I wanted her to go, yet I didn't -- not on this note.
"Jean." She glanced back,
but I
couldn't quite manage, Stay. So instead, I asked, "Are
you
going to be
around all evening? We could order out pizza and watch movies in
the
den."
It was a plea for everything to go back to the way it had been, what I was familiar with, not this strange new world I'd entered that might require me to have a future. I'd once thought I wanted more life, but then had realized how much effort it would take to live instead of merely exist. Dying was easier. There was nothing I had to work too hard at because it would all be over soon. I hadn't really accepted my death -- I'd embraced it. The boy who'd once been too stubborn to die had become too chicken to live. Living was hard.
Abruptly, I sat down in the snow,
arms wrapped around my knees. Jean hurried back over to kneel
beside
me. "Scott, what is it?"
But I couldn't explain; I'd
started rocking back and forth. I couldn't feel anything.
The cold was
everywhere and Jean's voice sounded as if it came from a long way
off. "Scott! Scott, what's happening?"
I was a little surprised when she
shook me, but it worked to snap me out of it. "I'm sorry, I'm
sorry,
I'm sorry," she was saying. "But you went all white, and you
weren't
answering at all . . ."
"It's too big," I choked out, forehead pressed to knees, no longer disconnected -- just scared. "It's too big. I don't know how to live. It's too big." She hesitated a minute, then wrapped her arms around me and just held on; I was reminded of the night she'd come after me when my mutation had first manifested. Jean's fearless that way. She'd bullied her way into my life, won me over despite myself, gentled me to her touch, then proceeded to make her friendship indispensable to me. For all that the rest gave me, when I was at the very end of my tether, it was Jean and only Jean who could haul me back. I could be weak with her in a way I couldn't with the others because they were all male -- and deep down, I was afraid of them. Still.
She was holding me very tight and stroking my hair, not saying anything. Finally, I shifted a little and pulled away. She let me. "I don't know what I'm going to do," I said.
"What do you mean?"
"With my life. I don't know
what
I'm going to do. I didn't think I'd have to figure it out."
She stroked my cheek with one
mittened hand. We were still half-sitting, half-kneeling in the
snow by
the wall. "I don't think you have to decide right now.
Besides, most
people don't know what they want to do with themselves at
seventeen." Reaching up,
she hooked a palm around the back of my head and pulled me near until
our foreheads touched. "You know, being scared of the future is
pretty
normal for a high school senior."
That brought me to a full mental stop. I hadn't been thinking about my feelings in any kind of context. My personal situation was so strange that I tended to forget I could feel the same as others my age, but Jean was right. I was a high school senior, however odd the circumstances, and now I had a reason to think about SAT scores and colleges and career counseling -- and the very mundanity of that brought a certain comfort. I could be like everyone else, at least in some ways.
"You want to go back in?" she
asked finally. "Hank is still down in the sub-basement, and
Charles is
with him. It'll just be us."
I eyed her. "They're
staying away
because you told them to."
"Well, yeah. But they're
also
going over the test results and your medical charts. You
presented Hank
with quite a puzzle, y'know. He'll be as happy as a bug in a rug
for at
least a month, trying to figure it out."
I laughed at that, but let her
pull me to my feet. I felt better. "So," I said as we
headed back, arm
in
arm, "you want that pizza?"
She swatted at me. "What is
it
with you and pizza?"
"What's wrong with pizza?"
And so it went. Things
were, if
not back to normal between us, at least on the mend. That evening
we
shared the couch to watch Xena: Warrior Princess, me leaning
against one arm and her against the other, our feet warring over the
middle. She looked up to ask, "Are you sure it's okay? The
touching
thing?"
I glanced over. "I told
you, it's
fine." Light from the TV and from the fire behind the grate
flickered
over her face and caught in her eyes, making them glow. I
hesitated,
then added, "But thanks for asking."
"I'm sorry I didn't before."
I shrugged, and a few minutes of
silence followed as we watched the end of the show, but when the
commercial break came, I said, "When I tense up sometimes -- it doesn't
have anything to do with you."
"I know. But I don't want
to make
you uncomfortable."
"You don't."
"Okay."
We kept watching TV until the wee hours when she fell asleep, lulled by the program buzz and the fire's warmth and the late hour. I got up to prod the logs in the fireplace with a poker. They were burning down and I considered adding another, but it was very late. Time for bed. I was just reluctant to give up the day. That was when I heard the distinctive whoosh of the elevator opening out in the hallway, and the hum of the professor's chair. I wondered if he'd come in or pass by, and which of those did I want? Then I felt the light brush of his mind on mine, a wordless query. He was letting me choose.
Rising, I put the poker away and went out to meet him instead of asking him to enter. He was sitting in the dark hallway not far from the elevator, but I couldn't discern more than the shadow of his form. "Jean fell asleep," I said softly, leaning up against the wall across from him, my hands in my pockets.
"How are you?" he asked. It was direct yet vague enough that I could choose how to answer.
"I don't know," I replied,
honestly. "I don't know if I can do this."
"Life happens day by day,
Scott. No differently than before."
"But I don't have the luxury of
just thinking day to day anymore."
He considered that.
"Perhaps," he
allowed. "But we can spend so much time thinking of the future,
we
forget to live. Mortality has a way of focusing the mind on the
things
that matter. One learns how to be alive, when walking in the
valley of
the shadow of death. But once you leave the valley, don't forget
the
lesson. No matter how
long our life may be, we still live it day by day."
"I guess."
"Go to bed, Scott. You're
still
recovering from the flu and need your rest."
"What about Jean --?"
"I'll wake her and send her to
bed, too."
"Okay."
"Goodnight, son."
"'Night."
I went upstairs and, in the morning, woke to the rest of my life.